Resources

- Information about pediatric cancer
- Support for families with children with cancer
- Managing daily life with a child with cancer
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For More Information about Childhood Cancer

CureSearch : www.curesearch.org

CureSearch is the umbrella organization of the Children's Oncology Group (COG), the world's largest pediatric cancer research collaborative, encompassing over 200 treatment and research facilities in the US and abroad. On their site, you'll find information about different types of pediatric cancer and updates on research being done in the field. Mira's Movement is a strong supporter of CureSearch/COG and the work that they do.

Association of Cancer Online Resources: www.acor.org

The Association of Cancer Online Resources has a section devoted to pediatric oncology disease information, treatment information, survivorship, and other resources.

The National Cancer Institute: www.cancer.gov, NCI Childhood Cancer Page

The National Cancer Institute is a division of the National Institutes of Health (NIH), which is finded by the federal government. Their site includes information on childhood cancer and clinical trials supported by the NCI.

For Latino families:

Padres Contra El Cancer: www.iamhope.org

Padres Contra El Cancer (Parents Against Cancer) is a non-profit organization committed to improving the quality of life for Latino children with cancer and their families. All PADRES programs, activities and services, while oriented to the Latino community, serve childhood cancer patients from all races and ethnic origins. No family is turned away. They are LA based. They may also provide case management assistance.

Support for families with children with cancer

The American Cancer Society: www.cancer.org - (800) 227-2345

ACS offers each family up to $400 in mileage reimbursements for medical travel. Call the 800 number to be connected with the ACS office in your region that can provide this support.


Camp Good Days: www.campgooddays.org - (800) 785-2135 or (585) 624-5555
Camp Good Days is a camp in Central New York that provides services to children with cancer and their siblings. The organization serves children from around the world. Young children (5-6) are eligible for a day camp program and older children can attend sleep away programs. Programs are held during the summer school break. Camp is free to all eligible children who want to attend, although a donation is appreciated if it's financially feasible.

Caring Bridge: www.caringbridge.org - (651) 452-7940

Caring Bridge provides free websites to people with all types of illnesses. Their sites make it easier to update large groups of people on the progress of their loved one. Their sites are easy to set up and use.

Double H Ranch: www.doublehranch.org - (518) 696-5676

The Double H Ranch provides specialized camping and year-round support for children and their families dealing with life-threatening illnesses.  Their goal is to enrich lives and provide camp experiences that are memorable, exciting, fun, empowering, physically safe and medically sound.  All programs are FREE of charge and capture the magic of the Adirondacks.

The Dream Factory: www.dreamfactoryinc.com - (800) 456-7556 or (502) 561-3001 (Kentucky)

The Dream Factory grants dreams to children diagnosed with critical or chronic illnesses who are 3 through 18 years of age.

Make-A-Wish Foundation: www.makeawish.org - (800) 722-9474 or (602) 279-9474 (Arizona)

Make-A-Wish offers wish grants to children with life threatening illnesses.

In New York State:

Parent to Parent of New York State: www.parenttoparentnys.org
(518) 381-4350 or (800) 305-8817

Parent to Parent has offices across NY State. They connect parents with other parents who have dealt with same issues of navigating health care/insurance systems. Includes Medicaid enrollment, assistance for a medically disabled child, etc.

Rochester area:

CURE: www.curekidscancer.com - 585.473.0180

CURE provides inpatient and outpatient support services to families receiving care at Golisano Children's Hospital at Strong Memorial.

Syracuse area:

The Jonathan Cancer Fund: www.jonathancancerfund.org - (315) 423-7747

The Jonathan Cancer Fund provides support to families of children being treated at University hospital. The JCF prvides help with the cost of meals for the family while the child is inpatient. They also offer money management services for families who receive donations from family and friends toward their medical and living expenses.
This is a fantastic organization and helped Mira's family tremendously for 3 years. If you are interested in making a donation to support their work, please call Marcia Bellinger, President, at the number above . Thank you!


In Pennsylvania:

Parent to Parent: www.parenttoparent.org - (888) 727-2706

Parent to Parent of Pennsylvania matches parents and fmaily members of children and adults with disabilities or special needs, to supporting parents on a one-to-one basis according to condition or concern.

Managing daily life with a child with cancer

Lotsa Helping Hands: www.lotsahelpinghands.com

This site provides online calendars and other tools that help make support groups easier to organize.

Share the Care: www.sharethecare.org

A website of information about organizing support groups. Based on the book by Cappy Capossela and Sheila Warnock.